Indexé dans
  • Base de données des revues académiques
  • Ouvrir la porte J
  • Genamics JournalSeek
  • Clés académiques
  • JournalTOCs
  • Infrastructure nationale des connaissances en Chine (CNKI)
  • Répertoire des périodiques d'Ulrich
  • Bibliothèque des revues électroniques
  • RechercheRef
  • Université Hamdard
  • EBSCO AZ
  • OCLC - WorldCat
  • Catalogue en ligne SWB
  • Bibliothèque virtuelle de biologie (vifabio)
  • Publions
  • Fondation genevoise pour la formation et la recherche médicales
  • Pub européen
  • Google Scholar
Partager cette page
Dépliant de journal
Flyer image

Abstrait

Meeting Patient Needs in Hereditary Angioedema Care

Autumn Ford Burnette

Hereditary angioedema (HAE) is a rare, chronic disease that causes recurrent episodes of severe swelling in the face, airways, limbs, and intestinal tract. Recent advances have provided HAE patients with more treatment options. My research and the work of others have investigated patient preferences and perspectives on available HAE prophylactic treatments. Increasing numbers of patients are taking prophylactic medication for HAE (primarily injectable) and most are satisfied with their current treatments. Nonetheless, as alternative treatments become available, their preferences may shift, with many patients expressing a desire for alternative routes of administration. Healthcare providers should have an ongoing, open dialogue with their patients regarding which HAE treatments are best for their needs.