Soins de santé : avis actuels

Communication courte

Plasminogen drug product stability study for intended use in ligneous conjunctivitis

• Alfonso Salvatore*, Alessandro Carluccia, Marialetizia Carforaa, Zelinda Raiaa, Chiara Orazzoa, Valentina Maielloa, Marcella Maddalunoa, Renato Marinielloa, Luca Sanguignoa, Ciro Battagliaa, Roberto Creaa, Marta Bellinia, Anna Falboa and Ester Ascionea

Communication courte

The potential role and impact of patients, advocates, and caregivers on medical publications and acceptance of treatments in rare diseases

• Mukund Nori

Communication courte

Netherton´s syndrome defined as a primary immunodeficiency

• María Claudia ORTEGA-LÓPEZ

Communication courte

Closing the diganostic gap in rare genetic conditions

• Lamia Mestek Boukhibar

Communication courte

Knowledge and awareness of the occurrence of sexual violence among adolescent in Ahmadiyya Muslim Jama’at Ijaiye Ojokoro, lagos, Nigeria

• Arowosegbe Olanrewaju Femi* and Adeniji Lateefah Olabisi

Communication courte

Unique patient identification as a necessary condition for clinical research in rare diseases

• Alex Sherman

Rapport de conférence passé

Past Conference Report - Rare Diseases 2021

• Sarah Willis